Zachary and his mother Bridget sit and wait for blood at Upstate University Hospital in Syracuse N.Y., Dec 18, 2013.
Bridget holds hands with her 4 children while searching for a Christmas tree, Nov 30, 2013. Left to right, Kerrigan, McKenzie, Bailey and Zachary.
The four kids lay with Bridget in her bed while she reads them a story in her home in Baldwinsville, N.Y. A bone marrow transplant is the only cure for Diamond Blackfan Aniema. All three sisters were tested and none proved to be a match.
A scar from where Zach's port is accessed when we receives blood transfusions.
Zach before his blood transfusion at Upstate University Hospital in Syracuse N.Y., Dec 18, 2013. Zachary asked Bridget, "If I run out of blood am I going to die? And I just assured him, that's never going to happen. We will make sure you never run out of blood."
After hours in the transfusion, Bridget's husband and father of Zachary, Ben Shaw comes to stay the rest of the afternoon at the hospital. She says, "Zach's future is something we worry about...We don't know what is going to happen."